I was hoping to get some good news this week in the form of a grant to get a new wig that will actually look like my real hair. Unfortunately the grant money is gone. Probably to a bunch of cancer patents who only needed it for a year or two. Yes I’m a little bitter, Yes they need it too, but when you are looking at people who can walk around bald because they don’t scarring and a blistery rash on their head, you do tend to get annoyed when they get all the help.

I have scarring alopecia. If you want to see pictures click here to check it out, it’s not of me, but you get the point. The first picture is closer to what I have, but mine is all over my head. Pretty much if I walked around I would be teased and pointed at relentlessly. I have had this condition since I was very young, it only started scarring when I was 12. I have lived most of my life with this and I was hoping to be able to get the chance to wear my hair up. Something I have not been able to do for over 10 years. Unfortunately I still won’t get the chance as these wigs or full cranial prosthesis, cost at least $300 plus supplies needed to attach it. Some insurance will cover them, but mine of course will not and it doesn’t look like I can find a plan that will unless I pay $300 a month, the point in that is?

So yes I’m a little bitter as I have to live with my hair loss for the rest of my life, unlike cancer where you either go into remission, die (hopefully not) or it goes away my hair will never grow back. There is no cure. I know I’m going to get people yelling at me because I’m mad at people with cancer, I’m not really mad at them, just the fact they get so much help when it comes to hair loss. While me who has to live with it gets nothing.

Maybe one day I’ll have an extra $300-500 to get one. Then I get to try to save up for when it starts to come apart. I really don’t know how long they are suppose to last. Oh well. I guess I just wear the falling apart cheep wigs I have now, not that i have a choice, I wish I had the choice to walk around with a bald head, I’d do it in a heartbeat if it meant I didn’t have to spend more money on a wig.

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